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Intellectual disability is a term used to describe a limitation in mental functioning and skills such as communicating, self-care, and social skills. While intellectual disabilities can exist as a stand-alone diagnosis, they are also frequently diagnosed with other disabilities such as Down syndrome, Fragile X syndrome and Fetal Alcohol Spectrum Disorder (FASD).

Intellectual disabilities can range across a broad spectrum, with diagnoses from very mild to severe. Intellectual disabilities are typically diagnosed using an IQ test and adaptive skills ratings.

This page will acquaint you with some of the resources available for families who have a concern about intellectual disabilities. In each case, we've taken the top four resources recommended by local experts in the field to help you get started. Additional resources may be found by using the View More links that follow each section.

Just Getting Started?

Families who are just beginning to explore a concern about their child's cognitive issues may benefit from Connecting for Kids' Empower the Parent program. This step-by-step resource shows you how to get started finding help for your child. We also encourage residents of the Connecting for Kids service area to contact us for personalized support.

The recommendations provided on the remainder of this page were made by experts at Fragile X Alliance of Ohio, GiGi's Playhouse Cleveland and The Up Side of Downs of Northeast Ohio. For more information on these organizations, please see their entries in the Connecting for Kids Provider Directory.

Recommended Organizations

The following organizations have been identified as places to get more information and support:

GiGi's Playhouse Cleveland (Down Syndrome Achievement Center)

* Featured *

Fragile X Alliance of Ohio

* Featured *

The Arc of Greater Cleveland

View in Provider Directory


* Featured *

The Up Side of Downs of Northeast Ohio

View in Provider Directory


* Featured *

In addition to the recommended organizations above, there are a number of other organizations who offer support to children with intellectual disabilities.

View more organizations...

Recommended Books

Learn more about intellectual disabilities from recommended books:


The Parent's Guide to Down Syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood
J. Jacob and M. Sikora


Understanding Fetal Alcohol Spectrum Disorder
M. Catterick and L. Curran


Understanding Fragile X Syndrome
I. Fernandez Carvajal and
D. Aldridge


We'll Paint the Octopus Red
S. Stuve-Bodeen

Recommended Websites, Downloads, Apps & Groups

Families may benefit from the following websites, downloads, apps and groups:

A Guide for New Parents:
Resources for new parents of a child with Down syndrome from The Up Side of Downs of Northeast Ohio

* Featured *

Fragile X 101 from the National Fragile X Foundation


* Featured *

Parent to Parent Network from The Up Side of Downs of Northeast Ohio
(closed Facebook Group)


* Featured *

FAS Community Resource Center

Call, text or email:

Phone: 1-440-570-5908
Email: info@connectingforkids.org

Address:

P.O. Box 45372
Westlake, Ohio 44145

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