This list identifies websites, online groups and downloads that families can use to help build understanding as well as apps for mobile devices that have helped families with a child diagnosed with intellectual disabilities.
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For featured resources, including our "top four" websites, downloads and apps as recommended by experts in the field, see the Intellectual Disabilities Resource Guide.
The following websites have been recommended by Connecting for Kids families as useful resources for individuals struggling with an intellectual disability:Down Syndrome
Fetal Alcohol Spectrum Disorder
Down Syndrome Education Online
Online resource for parents and educators working with a child who has Down syndrome. Online training, information and resources are available.
Down Syndrome Foundation of Orange County: Online Learning
Professionally-crafted learning modules with an online support community for families and educators of learners with Down syndrome.
FAS Community Resource Center
Online collection of resource guides for understanding and coping with FASD.
The following online groups* have been recommended by Connecting for Kids families as useful resources for individuals struggling with an intellectual disability:Down Syndrome
Fragile X Syndrome
Down Syndrome/Special Needs Potty Training (closed Facebook group)
Inclusion for Children with Down Syndrome within The Classroom (closed Facebook group)
The Up Side of Downs Parent to Parent Network (closed Facebook group)
Special Miracles: Down Syndrome Group (closed Facebook group)
Fantastically Fragile: The FX Brag Room (closed Facebook group)
Fragile X Alliance of Ohio (closed Facebook group)
The Fragile X Group (closed Facebook group)
*These groups are not affiliated with Connecting for Kids, but may be useful tools for families.
Connecting for Kids families have found the following brochures, screening tools, worksheets and other online publications useful in educating themselves and others on their child's intellectual disability.General Information
Ohio Department of Education: Definition of Intellectual Disability under IDEA
Online fact sheet that defines intellectual disability as it relates to the school setting.
Fetal Alcohol Spectrum Disorder (FASD)
DSi: Information Search
Online archive of information with topics ranging from early education to language development and daily living.
Down Syndrome Pregnancy: Article Collection
Collection of articles focusing on pregnancy, early development and family challenges.
Friendship Circle: 42 Great Down Syndrome Resources You Should Know About
Article that explores resources for families who have a child with Down sydrome. Includes research foundations, books, blogs and Pinterest boards.
Just Like You: Down Syndrome
YouTube video introduces Down syndrome and shares some of the similarities and differences between typical kids and their friends with Down syndrome.
NDSC: Family Care Toolkit
Information kit that families can complete to ensure that care information for an individual with Down syndrome is avalable for other caregivers or in case of emergency.
NDSC: Parent Webinars
Offers new webinars regularly as well as an archive of webinars that families can download.
NDSS: A Promising Future Together: A Guide for New and Expectant Parents
eBook that provides an overview of Down syndrome, an introduction to early intervention and resources for families. Available in English or Spanish.
Fragile X Syndrome
Friendship Circle: 17 Fetal Alcohol Syndrome Organizations and Resources To Know About
Article that explores resources for families who have a child with FASD. Includes organizations and books.
NOFAS: Fact Sheets
Collection of fact sheets covering FASD-related topics ranging from early identification to introducing a child with FASD to school and faith communities.
Cleveland Clinic Children's: A Guide to Navigating Your Fragile X Diagnosis
Handbook offers background information on Fragile X and overviews of the different treatment options available.
National Fragile X Foundation: Fragile X 101
Guide for the newly-diagnosed and those already living with Fragile X.
National Fragile X Foundation: Fragile X-associated Disorders (FXD): A Handbook for Families, Health Care Providers, Counselors, and Educators
Handbook covering background on Fragile X and treatments to help individuals with Fragile X.
More and more mobile applications (apps) are being develop to help individuals struggling with an intellectual disability. The following apps have been used by Connecting for Kids families:
Note: Starred apps (*) are available for families to try at no cost on the special needs iPad at Westlake Porter Public Library.
Choiceworks* (paid app)
Conversation Builder Deluxe* (paid app)
First Then Visual Schedule* (paid app)
iCreate...Social Skills Stories* (paid app)
PECS Phase III* (paid app)
Apple AppStore | Android APK
Proloquo2Go* (paid app)