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Organizations: Intellectual Disabilities

This list identifies local and national organizations that provide resources and support for individuals with intellectual disabilities. The list also includes resources for families who have a child with a Down syndrome diagnosis, a Fetal Alcohol Spectrum Disorder diagnosis or a Fragile X syndrome diagnosis as these are three of the most common diagnoses associated with an intellectual disability.

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For featured resources, including our "top four" organizations as recommended by experts in the field, see the Intellectual Disabilities Concern Topic Page.


The following organizations address intellectual disabilities at the general level:

American Association on Intellectual and Developmental Disabilities (AAIDD)
Nonprofit organization dedicated to improving resources for professionals working with individuals with intellectual and developmental disabilities and promoting inclusion. AAIDD produces journals and publications and also offers professional training.
1-202-387-1968
aaidd.org

Best Buddies
Nonprofit organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities.

Best Buddies International
1-305-374-2233
bestbuddies.org

Best Buddies Ohio
1-888-610-3015
bestbuddies.org/ohio

R-Word: Spread the Word to End the Word
Grass-roots organization working to raise awareness about the hurtfulness of the r-word by spreading stories and resources.
r-word.org

Special Olympics
Nonprofit organization providing year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities.

Special Olympics International
1-800-700-8585
specialolympics.org

Special Olympics Ohio
1-614-239-7050
sooh.org

Trinity Special Olympics
View in Provider Directory

Young Athletes: Special Olympics Programs
View in Provider Directory

The Arc
Nonprofit organization dedicated to promoting and protecting the human rights of people with intellectual and developmental disabilities and actively supporting their full inclusion and participation in the community throughout their lifetimes.

The Arc (main)
1-800-433-5255
thearc.org

The Arc of Ohio
info@TheArcofOhio.org
1-800-875-2723
thearcofohio.org

The Arc of Greater Cleveland
View in Provider Directory


According to the National Institute of Mental Health (NIH), "Down syndrome is a set of cognitive and physical symptoms that result from having an extra chromosome 21 or an extra piece of that chromosome. It is the most common chromosomal cause of mild to moderate intellectual disabilities." The following organizations support individuals diagnosed with Down syndrome:

Down Syndrome-Autism Connection
Nonprofit dedicated to providing education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism.
info@ds-asd-connection.org
1-720-757-7007
ds-asd-connection.org

Down Syndrome International (DSi)
UK-based international charity, whose membership is comprised of individuals and organizations from all over the world, committed to improving quality of life for people with Down syndrome worldwide.
contact@ds-int.org
+44 (0)1395 493108
ds-int.org

GiGi’s Playhouse Achievement Center
GiGi's Playhouses are a network of Down syndrome achievement centers that provide free therapeutic, educational and career training programs, resources and support to individuals with Down syndrome.
View in Provider Directory

Global Down Syndrome Foundation
Nonprofit dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.
1-303-321-6277
globaldownsyndrome.org

International Down Syndrome Community (IDSC)
IDSC is a volunteer-run organization that provides information to new parents, creates awareness about Down syndrome, connects Down syndrome organizations and their members and shares stories of sucess and inspiration.
theidsc.org

International Mosaic Down Syndrome Association (IMDSA)
Nonprofit with the mission of supporting any family or individual whose life has been touched by mosaic Down syndrome by continuously pursuing research opportunities and increasing awareness in the medical, educational and public communities throughout the world.
1-888-IMDSA-21
imdsa.org

National Association for Down Syndrome (NADS)
NADS supports all persons with Down syndrome in achieving their full potential by providing resources to families, educating the public, addressing social policy issues and encouraging participation of self-advocates.
info@nads.org
1-630-325-9112
nads.org

National Down Syndrome Congress (NDSC)
National nonprofit dedicated to providing support resources for families and individuals with Down syndrome.
info@ndsccenter.org
1-800-232-NDSC (6372)
ndsccenter.org

National Down Syndrome Society (NDSS)
National nonprofit dedicated to providing the opportunity for individuals with Down syndrome to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
info@ndss.org
1-800-221-4602
ndss.org

The Upside of Downs of Northeast Ohio (USOD)
Local nonprofit organization whose mission is to provide support, education and advocacy for individuals with Down syndrome, their families and communities.
View in Provider Directory


According to the National Institute of Mental Health (NIH), "Fetal Alcohol Spectrum Disorders (FASD)" is now used to characterize the full range of prenatal alcohol damage varying from mild to severe and encompassing a broad array of physical defects and cognitive, behavioral, and emotional deficits." The following organizations support individuals diagnosed with FASD:

Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD)
Consortium with the purpose of informing and developing effective interventions and treatment approaches for Fetal Alcohol Spectrum Disorders (FASD), through multidisciplinary research involving basic, behavioral and clinical investigators and projects.
1-619-594-4601
cifasd.org

Families Affected by Fetal Alcohol Spectrum Disorders (FAFASD)
Nonprofit that seeks to spread information, awareness, and hope for caregivers of people with FASD.
1-413-570-5966
fafasd.org

National Organization on Fetal Alcohol Syndrome (NOFAS)
NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities.
1-202-785-4585
nofas.org

Double ARC Center for FASD
Founded by the Sisters of Notre Dame, Double ARC is the Ohio affiliate of NOFAS.
1-419-330-5057
doublearc.org


According to the National Institute of Mental Health (NIH), "Fragile X syndrome is a genetic condition that causes a range of developmental problems including learning disabilities and cognitive impairments." The following organizations support individuals diagnosed with Fragile X syndrome:

FRAXA Research Foundation
National nonprofit, committed to finding effective treatments and eventually a cure for Fragile X syndrome.
info@fraxa.org
1-978-462-1866
fraxa.org

Fragile X Alliance of Ohio
The Fragile X Alliance of Ohio is the local chapter of FRAXA. This organization provides family support, promotes education of physicians, therapists, educators and the general public and supports research on Fragile X syndrome.
fragilexohio.org

National Fragile X Foundation
Nonprofit with the mission of increasing awareness, improving public policy, supporting legislative advocacy, and increasing funding for research for Fragile X syndrome.
1-800-688-8765
fragilex.org

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