This list identifies websites and downloads that families can use to help build understanding as well as apps for mobile devices that have helped families with a child diagnosed with epilepsy.
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The following websites have been recommended by Connecting for Kids families as useful resources for individuals struggling with epilepsy:
Center for Disease Control (CDC): Epilepsy Topic Page
Extensive collection of epilepsy-related materials, including data and statistics, research and scientific articles.
Kid-friendly recipes for the Ketogenic diet.
National Institute of Neurological Disorders and Stroke (NINDS): Epilepsy Info Page
Overview and treatment information along with a list of organizations and resources.
Connecting for Kids families have found the following online publications useful to educate themselves and others on epilepsy.
CDC: "You Are Not Alone"
Online tool kit developed for parents of teens who have epilepsy.
Epilepsy Association: Be SMART about Epilepsy
eBook for school personnel discussing seizures, medication, first aid and more.
Epilepsy Foundation: Epilepsy and My Child Tool Kit
eBook contains information and resources to help manage epilepsy.
Epilepsy Foundation Self-Management Tools
Online resource center includes many self-management tools, such as a seizure plan, medication schedule, seizure calendar and camp checklist.
Epilepsy Foundation: Seizure First Aid Posters
Printable posters with basic seizure first aid instruction.
Mount Sinai Beth Israel Pediatric Epilepsy Center: Parents’ Guide: When the Seizures Don’t Stop…Why—And What to Do Next
eBook by S. Wolf, MD & P. McGoldrick, CPNP that outlines frequently asked questions and includes organizational tools.
More and more mobile applications (apps) are being developed to help individuals struggling with epilepsy. The following apps have been used by Connecting for Kids families:
Birdhouse for Epilepsy (free lite edition or paid service)