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Has your child been diagnosed with epilepsy? Epilepsy is a brain disorder that causes people to have recurring seizures. The seizures happen when clusters of nerve cells, or neurons, in the brain send out the wrong signals. People may have strange sensations and emotions or behave strangely. They may have violent muscle spasms or lose consciousness. Epilepsy has many possible causes, including illness, brain injury, and abnormal brain development. In many cases, the cause is unknown.

This page will acquaint you with some of the resources available for families who have a concern about epilepsy. In each case, we've taken the top four resources recommended by local experts in the field to help you get started. Additional resources may be found by using the View More links that follow each section.

Just Getting Started?

Families who are just beginning to uncover a concern about epilepsy may benefit from Connecting for Kids' Empower the Parent program. This step-by-step resource shows you how to get started finding help for your child. We also encourage residents of the Connecting for Kids service area to contact us for personalized support.

You're Not Alone.

In addition to the resources on this page, CFK offers opportunities to learn and connect with other families.

To Learn More:

To Connect:

The recommendations provided on the remainder of this page were made by Empowering Epilepsy and the Epilepsy Association. For more information on these organizations, please see their entries in the Service Provider Directory.

Recommended Organizations

The following organizations have been identified as places to get more information and support:

Empowering Epilepsy

1-440-248-6158
empoweringepilepsy.org
View in Provider Directory

* Featured *

Epilepsy Association

1-216-579-1330
epilepsyinfo.org
View in Provider Directory

* Featured *

Epilepsy Foundation

1-800-332-1000
contactus@efa.org
epilepsy.com


The Rare Epilepsy Network

1-888-886-3745
ren@rti.org
ren.rti.org


In addition to the recommended organizations above, there are a number of other organizations supporting epilepsy in children.

View more organizations...

Recommended Books

Learn more about epilepsy and help your child with these recommended books:

Cleveland Clinic Guide to Epilepsy
E. Wyllie, MD

Library Partners | Amazon Smile


Taking Seizure Disorders to School: A Story About Epilepsy
K. Gosselin

Library Partners | Amazon Smile


Mommy, I feel Funny! A Child's Experience with Epilepsy
D. Rocheford

Library Partners | Amazon Smile
En EspaƱol


The Great Katie Kate Explains Epilepsy
M. DeLand

Library Partners | Amazon Smile

Recommended Websites, Downloads & Apps

Families may benefit from the following websites, downloads and mobile applications (apps):

Be SMART about Epilepsy
eBook from Epilepsy Association

View

Self-Management Tools
Downloadable tools from Epilepsy Foundation

View

Epilepsy and My Child Tool Kit eBook from Epilepsy Foundation

View

My Seizure Diary (app)
from Epilepsy Foundation

Apple AppStore | Google Play

Call or email:

Phone: 1-440-250-5563
Email: info@connectingforkids.org

Address:

P.O. Box 45372
Westlake, Ohio 44145

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